Staying Connected podcast

Staying Connected

Sharing our stories with vascular and aortic connective tissue conditions

Sharing our stories with vascular and aortic connective tissue conditions

 

#124

Dr. Hal Dietz

In this episode, I have the honor of talking with Dr. Hal Dietz about his research in VEDS... more

02 Dec 2025

52 MINS

52:04

02 Dec 2025


#123

Paul Korotish

Today we’re going to talk with Paul Korotish, who was just diagnosed with VEDS last year a... more

26 Nov 2025

26 MINS

26:59

26 Nov 2025


#122

Dr. David Murdock

Today we’re going to talk with Dr. David Murdock, a clinical geneticist at the University ... more

18 Nov 2025

36 MINS

36:16

18 Nov 2025


#121

Mike Osuna and Jeanette Garcia-Osuna, sharing Lucas’s Story

In this episode, we’re going to talk with Mike Osuna and Jeanette Garcia-Osuna about their... more

11 Nov 2025

1 HR 23 MINS

1:23:17

11 Nov 2025


#120

Reconnecting with Grace Barnhart

In this episode, we’re going to reconnect with Grace Barnhart, who was on the show a coupl... more

04 Nov 2025

51 MINS

51:53

04 Nov 2025


#119

Amos Marsters

Today we’ll be talking to Amos Marsters, who grew up with the knowledge of VEDS and a fami... more

28 Oct 2025

1 HR 00 MINS

1:00:16

28 Oct 2025


#118

Call for interviewees for the next season of Staying Connected!

It’s been a minute, and I am excited to get back to the show. If you’re intere... more

29 Jul 2025

00 MINS

00:45

29 Jul 2025


#117

Carlos Morales, sharing Kaitlyn’s story

Today, we’re going to talk to Carlos Morales, who lost one of his children, Kaitlyn, to an... more

03 Jan 2025

55 MINS

55:42

03 Jan 2025


#116

Carmen David

Today, we’re going to talk to Carmen David, who is going to share her experience with an a... more

27 Dec 2024

58 MINS

58:24

27 Dec 2024


#115

Reconnecting with Bella Marin aka in_VEDS_tigator

Today, we’re going to talk to Bella Marin, who was previously on the show to talk about he... more

20 Dec 2024

58 MINS

58:21

20 Dec 2024


#114

Marisa Hart

In this episode, we talk to Marisa Hart, who was diagnosed with Marfan syndrome as a child... more

13 Dec 2024

44 MINS

44:36

13 Dec 2024


#113

Tammy Asplund

Today we’re going to talk to Tammy Asplund about her story with Loeys-Dietz syndrome, whic... more

06 Dec 2024

40 MINS

40:15

06 Dec 2024


#112

Ryan Rodarmer

Today we’re going to talk to Ryan Rodarmer, the director of The VEDS Movement, about his p... more

29 Nov 2024

56 MINS

56:16

29 Nov 2024


#111

Claudia Arbelaez

Claudia Arbelaez joins the show to share her story with Vascular Ehlers-Danlos syndrome (V... more

22 Nov 2024

46 MINS

46:31

22 Nov 2024


#110

Bridget Porter (Metz) sharing Connor’s story with Loeys-Dietz syndrome

Bridget Porter (Metz) joins the show to share her son, Connor’s, story with Loeys-Dietz sy... more

15 Nov 2024

1 HR 06 MINS

1:06:33

15 Nov 2024


#109

Debbie Vaughan, sharing Josh Doss’s story with VEDS

Today we will be hearing from Debbie Vaughan about her experience with Vascular Ehlers-Dan... more

06 Sep 2024

1 HR 15 MINS

1:15:07

06 Sep 2024


#108

Melanie Case

Today we’re going to hear from Melanie Case, who was diagnosed with Marfan syndrome in 200... more

30 Aug 2024

43 MINS

43:39

30 Aug 2024


#107

Nancy Billon

In this episode we’re going to talk to Nancy Billon, who was diagnosed with Vascular Ehler... more

23 Aug 2024

47 MINS

47:21

23 Aug 2024


#106

Hugh Cox

In this episode we’re going to talk to Hugh Cox, a member of the Vascular Ehlers-Danlos Sy... more

16 Aug 2024

51 MINS

51:09

16 Aug 2024


#105

Maggie Buckley

In this episode we’re going to talk to Maggie Buckley, a long-time member of the community... more

09 Aug 2024

48 MINS

48:51

09 Aug 2024


#104

Erin Langley

Erin Langley was tested for VEDS (Vascular Ehlers-Danlos Syndrome) due to some concerning ... more

02 Aug 2024

47 MINS

47:42

02 Aug 2024


#103

Carlos Horn

Carlos Horn was diagnosed with VEDS (Vascular Ehlers-Danlos Syndrome) last year, in 2023. ... more

26 Jul 2024

45 MINS

45:42

26 Jul 2024


#102

Special: Emotional Recovery

After my recent renal dissection, kidney infarction, and iliac dissection with Vascular Eh... more

22 May 2024

40 MINS

40:21

22 May 2024


#101

Reconnecting with my brother, Jacob Frederick

My brother, Jacob Frederick, rejoins the show. Our last interview was only a couple weeks ... more

04 May 2024

1 HR 03 MINS

1:03:34

04 May 2024