
<p>In this episode, we’re going to reconnect with Grace Barnhart, who was on the show a couple years ago sharing her personal story and caregiver story with Marfan syndrome. Grace is coming back on the show to talk about how her emotional experience with Marfan syndrome has changed over the last couple years, as well as her recent eye surgeries. &nbsp;</p>



<p>If you want to listen to Grace’s first interview on the show, you can listen to it here: <a href="https://staying-connected.blubrry.net/2023/11/22/grace-barnhart/">https://staying-connected.blubrry.net/2023/11/22/grace-barnhart/</a>&nbsp;</p>



<p>You can find Grace on Facebook at <a href="https://www.facebook.com/grace.barnhart.967">https://www.facebook.com/grace.barnhart.967</a>   </p>



<p>Find more information, including support groups and webinars, about VEDS, Marfan, and Loeys-Dietz, at <a href="http://thevedsmovement.org">thevedsmovement.org</a>, <a href="http://loeysdietz.org">loeysdietz.org</a>, and <a href="http://marfan.org">marfan.org</a>. You can also find information and resources through the John Ritter Foundation, <a href="https://johnritterfoundation.org" title="johnritterfoundation.org">johnritterfoundation.org</a> </p>



<p><strong>Links to resources, events, and research opportunities:&nbsp;</strong></p>



<p>VEDS Collaborative Research Study: Email <a href="mailto:vedscoll@ohsu.edu">vedscoll@ohsu.edu</a>&nbsp;</p>



<p>Marfan Foundation/The VEDS Movement/Loeys-Dietz Syndrome Foundation Events:</p>



<p><a href="https://marfan.org/calendar">https://marfan.org/calendar</a></p>



<p>Join a Walk for Victory:</p>



<p><a href="https://marfan.org/walk/">https://marfan.org/walk/</a></p>



<p>Help and Resource Center<a href="https://marfan.org/ask">https://marfan.org/ask</a></p>



<p><a href="https://loeysdietz.org/ask">https://loeysdietz.org/ask</a></p>



<p><a href="https://thevedsmovement.org/ask">https://thevedsmovement.org/ask</a></p>



<p><strong>Support</strong></p>



<p>Merch! You can now buy merch that helps you raise awareness of VEDS, Marfan, and Loeys-Dietz while supporting Staying Connected at my Printify pop-up store: <a href="https://staying-connected.printify.me/products">https://staying-connected.printify.me/products</a>&nbsp;</p>



<p>You can make a one-time donation to Translucent One LLC at <a href="https://www.paypal.com/ncp/payment/7BAB4R3QAA4R8">https://www.paypal.com/ncp/payment/7BAB4R3QAA4R8</a>, or you can also support this podcast by subscribing to my Patreon at <a href="https://www.patreon.com/Translucentone">https://www.patreon.com/Translucentone</a>. </p>



<p>Thank you to all my patrons for supporting the show, and extra thanks to my top-tier Connected Patrons:</p>



<p>Jon HoltomAdventuresinlove4AndieRyan RodarmerBenjamin WeismanFiona McIver</p>



<p><strong>Disclaimer</strong>&nbsp;</p>



<p>The views, information and opinions in the podcast are solely those of the individuals involved and the information presented does not constitute medical or other professional advice or services. Any opinions I express in this podcast are my own, and not of my employer.&nbsp;</p>
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