Bobby Glen shares his family&#39;s journey, from getting a diagnosis to participating in a clinical trial, and the importance of early screening and community support. This is Part 1 of a two-part series about raising a child with HNRNPH2, a rare disease that affects speech and motor skills. Part 2 will feature his wife, Nicole, who reflects on how this experience has shaped her work as a pediatrician and her views on patient advocacy and communication differences like stuttering.If you&#39;d like to reach out to Bobby, you can email him at glennrw@gmail.com. Support this podcast at — <a rel='payment' href='https://redcircle.com/proud-stutter/exclusive-content'>https://redcircle.com/proud-stutter/exclusive-content</a> Advertising Inquiries: <a href='https://redcircle.com/brands'>https://redcircle.com/brands</a> Privacy & Opt-Out: <a href='https://redcircle.com/privacy'>https://redcircle.com/privacy</a>

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What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 1]

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