This episode is Part 2 of our series “What We Can Learn from the Rare Disease Community.” Last week, we heard from Bobby Glen about navigating the healthcare system as a parent of a child with HNRNPH2. Today, his wife Nicole—who is also a pediatrician—joins us to share how raising a child with a rare disease has shaped the way she practices medicine, approaches patient advocacy, and supports families navigating speech and communication challenges.Event Alerts: <a href="https://rafaelfilm.cafilm.org/speech-diversity-2/" rel="nofollow">Docs on Stuttering – May 8</a> (Use &#34;PROUD25&#34; at checkout for a free ticket) Docs on Disability – May 15, featuring Marlee Matlin’s Sundance-premiered documentary <a href="https://docs.google.com/forms/d/e/1FAIpQLSc8KUOtMylCf7RsCdO_mayq7p5cY_FLo9d-sWhTsoomiskITQ/viewform?usp=preview" rel="nofollow">Philly Proud Stutter Gathering</a> – May 19 Save The Date: Proud Stutter Annual Gala in San Francisco – October 9 (listeners get 50% off tickets!)And yes, Survivor fans—our recap will be back to cover the season finale, which airs on May 21, 2025! Go Mitch! Support this podcast at — <a rel='payment' href='https://redcircle.com/proud-stutter/exclusive-content'>https://redcircle.com/proud-stutter/exclusive-content</a> Advertising Inquiries: <a href='https://redcircle.com/brands'>https://redcircle.com/brands</a> Privacy & Opt-Out: <a href='https://redcircle.com/privacy'>https://redcircle.com/privacy</a>

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What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 2]

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