In this episode we meet Kathleen Downes- a 31-year-old woman who lives with her parents and dog in New York. Kathleen has cerebral palsy, which means she needs constant care to do daily activities. Kathleen talks about the complicated relationship between care recipients and their families, the broken policies that force impossible choices, and the radical act of finding joy despite a system designed for isolation. _The episode transcript can be found <a href="https://www.refamulating.com/transcripts/caregiving-receiving">here</a>. _Connect with us: EMAIL: <a href="mailto:hello@refamulating.com">hello@refamulating.com</a>. <a href="https://www.refamulating.com/">WEBSITE</a><a href="https://www.instagram.com/refamulating/">INSTAGRAM</a><a href="https://www.tiktok.com/@refamulating">TIK TOK</a>_Subscribe to our <a href="https://refamulating.substack.com/">Substack</a> for more refamulating! We write about how refamulating looks in our lives, share resources we’re using as we make this show and share special bonus content for paid subscribers._Our team Host: <a href="https://www.juliawinston.com/">Julia Winston</a>Producer: <a href="https://www.clairemcinerny.com/">Claire McInerny</a> Audio Engineer: <a href="https://joshgilbertmedia.com/">Josh Gilbert</a>Theme Music: <a href="https://www.luketop.com/">Luke Top</a>–We are a member of the <a href="https://www.feelingsand.co/">Feelings and Co</a> network.  Learn more about your ad choices. Visit <a href="https://podcastchoices.com/adchoices">podcastchoices.com/adchoices</a>

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16 I Caregiving & Family Pt 1: What It's Really Like To Receive Long-Term Care When You Have a Disability

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